In August 2022, I made the commitment to run my first marathon in April 2023.  It was a quiet commitment to myself, but through conversations with colleagues and friends, many of you became interested, and immediately asked, 'How can I donate/support?'.

No big event should go without a cause, and with that, I ask you to please donate to PSP research.

Why PSP? In December 2019, my grandmother passed after many years of suffering from PSP.  It may not be one of the more common diseases (roughly 1 in every 100,000 elderly over the age of 60), but its slow debilitating nature makes it painful to witness, and even more difficult for the individual.

What is PSP? PSP (Progressive Supranuclear Palsy) is a destructive, progressive and incurable neurodegenerative movement disorder, broadly similar to motor neuron disease. It can present a range of symptoms including problems with balance, swallowing and speaking, as well as general slowness of movement which means it is often mistaken for Parkinson's disease.

Sadly, there are no disease-slowing treatments at this time and typically people with PSP lose independence within 2-3 short years, with a life expectancy of only 6-8 years from diagnosis. 

The Jeffrey Young Research Programme for Progressive Supranuclear Palsy Research aims to support research to discover new drugs that may slow, stop or even reverse the devastating symptoms of PSP.