Our precious little girl was born with an extremely rare genetic syndrome, and there has been hardly any research done over the years. 

Sofea is 5 years old and is a very happy little girl, we couldn’t imagine our lives without her. The future for Sofea is completely unknown and in order to give her and other children with RTS the best possible outcome in life, we are raising money for the RTS Support Charity. 

The charity helps bring families together to share their experiences and help them to feel like they are not alone on this journey and will be Co-funding a PHD student to gather research as the last PHD completed was in 2004.  Will you help us spread our story . 

We can’t thank you enough for your support. X