Daniel 's Le Mans 24Hr Endurance Race page

Daniel Jerred is raising money for Duchenne UK
£923
raised of £2,000 target
Donations cannot currently be made to this page

Le Mans 24Hr Endurance Race · 15 July 2017

Duchenne UK

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RCN 1147094
We have one clear aim: to End Duchenne

Story

On July 15th/16th I am competing in the above event which is probably the biggest challenge/fundraiser i have attempted so far, in the past i have thrown myself from an airplane and cycled from Lands End to John O'Groats, however this time i will be attempting to complete the full race on my own with no support drivers.


Duchenne muscular dystrophy (DMD) is the most common fatal genetic disease diagnosed in childhood. The disease almost always affect boys, and they tend to be diagnosed before the age of 5. Duchenne muscular dystrophy is classified as a rare disease. There are around 2,500 patients in the UK and an estimated 300,000 sufferers worldwide.

Children born with Duchenne muscular dystrophy have a fault, known as a mutation, on their dystrophin gene, the longest gene in the body. The fault means that they cannot produce dystrophin, a protein that is vital for muscle strength and function. This lack of dystrophin results in a progressive deterioration of muscle strength and function.

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About the charity

Duchenne UK

Verified by JustGiving

RCN 1147094
As the leading Duchenne muscular dystrophy (DMD) charity in the UK, we want to find effective treatments for DMD and end its devastating impact. We’re going further than anyone has before, and we’re doing it faster, because this generation of people living with DMD can’t wait.

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£922.31
+ £191.25 Gift Aid
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£922.31
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