Story
On July 15th/16th I am competing in the above event which is probably the biggest challenge/fundraiser i have attempted so far, in the past i have thrown myself from an airplane and cycled from Lands End to John O'Groats, however this time i will be attempting to complete the full race on my own with no support drivers.
Duchenne muscular dystrophy (DMD) is the most common fatal genetic disease diagnosed in childhood. The disease almost always affect boys, and they tend to be diagnosed before the age of 5. Duchenne muscular dystrophy is classified as a rare disease. There are around 2,500 patients in the UK and an estimated 300,000 sufferers worldwide.
Children born with Duchenne muscular dystrophy have a fault, known as a mutation, on their dystrophin gene, the longest gene in the body. The fault means that they cannot produce dystrophin, a protein that is vital for muscle strength and function. This lack of dystrophin results in a progressive deterioration of muscle strength and function.
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