Patrick and I have decided to run the Rob Burrow Leeds Marathon this May to raise money and awareness for Motor Neurone Disease.

Our uncle Nick, was diagnosed with MND in December 2017. In less than a year, he went from being a really fit, athletic, 55 year-old, to being unable to walk and given months to live. But because of technology advances, great support from the NHS and his carers (see more below), and Nick's relentless positivity, he's still squeezing every last drop out of life. He goes to gigs every week (sometimes even pushing himself to the front row), gets to as many Villa games as he can (which is probably shaving off his life expectancy) and has stepped up his climate activism (https://www.theguardian.com/lifeandstyle/2022/sep/05/the-people-making-a-difference-the-climate-activist-fighting-fossil-fuel-giants), getting himself arrested in the process. 

He couldn't have done it all without the funding that has gone towards improving treatment and support for those with MND.

But he also couldn't have done it without his carers, and in particular our aunt Juliet, who has given up her job (and many other things) to support Nick, which is a full time (and mostly unpaid) role. Carers are often the invisible heroes behind those with life changing diseases, and don't get the attention or support that they need and deserve.

For this reason we are fundraising for Motor Neurone Disease Association - West Yorkshire where our aunt Juliet runs a group for carers funded by this branch.

Any donations at all will be greatly appreciated!