This will be the hardest challenge that I have ever done, or am likely to do. 

It's a personal challenge for me, with the aim of getting the job done. 

It is also an opportunity to raise some awareness about the rare genetic condition called EDS and introduce you to a remarkable young lady called Lauren Meyler.....I shall borrow her last sentence of her statement below and use it when things get a little tough during the event!

Thank you for your support and donation. 

Please read Lauren's account of life with EDS.

Hi, I’m Lauren and I’m 12 years old and I am in my first year of secondary school. I suffer from a rare genetic condition called Ehlers Danlos Syndrome (EDS) Type 3. In addition to my EDS, I also have six other conditions (Postural Orthostatic Tachycardia Syndrome (POTS), Sensory processing disorder, Gastroparesis, Over Active Bladder & Chronic Regional Pain Syndrome (CRPS)).

Due to problems with my stomach, I am now tube fed via my PEG, which I call Peggy ☺. Due to my pain and subluxations, I have to wear lots of braces which make me look like a robot. I also have to use my wheelchair & walking stick for when I am not having a good day. As a result of my CRPS, I have lost the use of my right hand. School have kindly given me a laptop to use at school.

My Sensory Processing Disorder means that my senses are all messed up, so I find noise, touch smell etc. very uncomfortable. 

Currently my life revolves around hospital appointments (there can be up to 8 a week) & having to take over 20 different medicines a day.

I have just come out of hospital after a 3 month stay and I’m gradually  getting back to school which I’m really excited about.

As you can imagine there isn’t much time to be a typical 12 year old i.e. spending time with your mates and going out with them. 

Despite all this, EDS won’t stop me and it certainly won’t beat me!

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