I'm running the TCS London Marathon for the MPS Society, a charity which supports children and families affected by rare genetic conditions. Donate today and help this wonderful charity. 

My sister, Emma, was diagnosed with Sanfilippo syndrome at the age of 6. The syndrome is a rare genetic metabolism disorder. A change in a single gene makes a child's body unable to break down certain carbohydrates, which leads to serious problems in the brain and nervous system. 

The illness is terminal, with a cure yet to be found, and made my sister spend the large majority of her life in 24/7 care which was undertaken by, mainly, my mum and dad, as well as me, my brothers and sister. 

Going to Treliske hospital was a regular occurrence growing up as Emma spent a lot of time needing professional care and treatment. There were many times we thought we'd lost her, including one year when she spent 10 consecutive weeks in hospital.  

Emma lost her life on 21st December 1999 when she was just 18 years old. 

I know it's a hard time for everyone at the moment, but any donations, big or small, would be greatly appreciated to help me on my journey to run in the memory of my sister. 

Those of you that know me knows I've been doing anything I can to avoid exercise at all costs for the last few years... so give me some money because we all know I'm going to suffer physically for the next four months!