This May I am participating in Dazzle Walk 2022 to raise money for The Ehlers-Danlos Support UK.

As some of you may know, in August 2020 I was diagnosed with a rare genetic condition called Ehlers-Danlos Syndrome. It affects the connective tissue in my body and causes pain, dislocations and other issues.

Medical students are taught 'when you hear hoofbeats don't think zebras'. This is a way of teaching them to don't automatically jump to the rare disease and to go through with the more common conditions first. This leads to many people having to fight for a diagnosis and the process can get quite long. But some people are zebras. Zebras are out there. People with EDS are zebras. 

A group of zebras are called a dazzle, which is why I am raising money for EDS UK this May (EDS awareness month) with a dazzle walk. I will be walking alongside EDS UK head office to raise money and educate people on EDS.

EDS UK are a fantastic charity that I am proud to volunteer with as an area co-ordinator managing the Milton Keynes group. They do so much for people with EDS, and I would love to give something back.