On august 4th 2020 we got a phone call that would change our lives forever. At 2.5 weeks old our precious little baby Cory was diagnosed with Cystic Fibrosis.

During that phone call and the many appointments that followed I realised I knew next to nothing about this life long illness. 

Cystic fibrosis is a genetic condition that causes thick mucus which affects the lungs and digestive system. Daily physio treatments are needed to keep his lungs healthy and enzymes are taken with all meals to help him absorb fats.

We have a lot of appointments with his CF care team at QA, and the CF team at Southampton, where they check him constantly for coughs and check to see if he is growing any bacteria in his lungs which due to CF will be hard to shift and can cause lung damage. 

As part of the team we have a dietician who keeps us on track making sure he is growing....... least we have cracked that one for now!!!

We have a physiotherapist who teaches us about his treatments which we do at home 2/3 times a day.

The daily care for someone with CF is time consuming and physically and mentally challenging. There is not a day that can go by without doing his treatments and taking his medication. 

In recent years there has been revelations in the medicines and lung care that CF patients now have. These are giving the CF community hope for much longer lives. 

For these new medicines we are extremely grateful, but they are not a cure.

We want to help raise funds for the CF trust so that they can keep funding research and we live in hope that there will one day be a cure. 

We look at our gorgeous baby everyday and see him fighting through his coughs and taking medicine after medicines day in day out, they don’t call them CF warriors for nothing!

Our Cory is our little warrior and he deserves a bright future, so please help us to help the CF trust

Thankyou  from the bottom of our hearts x