Colin Daly

Colin's Race to the Stones Page

Fundraising for FIBROUS DYSPLASIA SUPPORT SOCIETY
£1,320
raised of £1,000 target
Donations cannot currently be made to this page
Race to the Stones, 4 July 2020
We support sufferers of bone disease to help improve lives and understanding

Story

Thanks for taking the time to visit my JustGiving page.

I have signed myself up to take part in a 100km ultra marathon across the Oxfordshire ridgeway in 24 hours. I have just under a year to prepare for the challenge and as this will be second time I’m fully aware of the physical and mental test I have before me. 

I have chose fibrous dysplasia for two reasons. 

Firstly my mum was diagnosed  with fibrous dysplasia over 40 years ago 

secondly to raise awareness. 

Not  all diseases are visible to the naked eye but I know that the pain endure on a daily basis is unbearable. The endless appointments and trials as there isn’t the funding there for extensive research. 

There is no cure so it’s all about management and the more research that can be done the more it will assist suffers. 

Thank you for your support 

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About the charity

The Fibrous Dysplasia Support Society (FDSS) was formed in 2007 by a group of patients, and their carers, who are affected by Fibrous Dysplasia, McCune Albright Syndrome (MAS) or Cherubism. It exists to provide information and support by sharing our knowledge and experience of the condition.

Donation summary

Total raised
£1,320.00
+ £10.00 Gift Aid
Online donations
£1,165.00
Offline donations
£155.00

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