Story
The Lily Foundation was founded in Lily's memory, having lost her battle to Mitochondrial Disease at just eight months old. The charity aims to give hope, answers and support to the many other children and families that face the challenges of this disease today.Did you know every twenty minutes a child is born who will develop Mitochondrial Disease by the age of 16! There is no cure for this disease which is for many, debilitating and life limiting.Please stand with us and fight Mitochondrial Disease and fight for hope.
My close friend Rachael and brother Jo Jo have Mitochondrial Disease. I have been friends with them since they were born and seen how this disease has taken away their quality of life. They both are funny, intelligent and wonderful people who have not stop fighting. I want to raise more awareness about the disease so people understand the hardship of this disease. I also want to raise money for the Lily Foundation which has supported my friends and continues to fight for HOPE!