Working to improve understanding and treatment of CSF leaks. Crucially they are treatable if appropriate action is taken. Too often they are misdiagnosed with ineffective or harmful treatments given causing unnecessary suffering and the possibility serious complications developing. CSF leaks result in a loss of the fluid that surrounds, cushions and cleanses the brain and spine, resulting in crippling pain and disabling neurological symptoms which progressively worsen with sitting or standing. This means people spend most of their time lying flat, unable to participate in any kind of normal life. Once active people suddenly find themselves isolated, unable to work, care for themselves or their family. The impact of this on families is devastating and causes a high mental health burden. Run solely by volunteers meaning every penny goes towards increasing understanding, providing support for patients and offering a trustworthy resource for the the medical profession. CSFleak.uk