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In March 2019, my sister Sal underwent major surgery to remove a large cavernoma from the left side of her brain which had caused permanent damage to the area controlling her right leg. After 5 weeks of hospitalisation, neuro-rehabilitation and a great deal of support from friends and family, she gradually learnt to walk again.

Cavernomas are pretty rare and a typical one looks like a raspberry. It's filled with blood that flows slowly through vessels that are like "caverns". Only 1 in 620 people get them with only 1 in 400,000 getting symptoms because they bleed. Sal's cavernoma unfortunately was in danger of more catastrophically bursting and required removing, hence the brain surgery.

Information, research and knowledge about Cavernomas is hard to come by. Sal faced with a life changing diagnosis found the Cavernoma Alliance UK invaluable. They provide practical support, friendship and are a focus for clinicians to connect with patients and Sal was able to make decisions about brain surgery with an understanding of her condition. Without the support of the Cavernoma Alliance UK, Sal's recovery journey would have been much more challenging.

Whilst she has made a good recovery from her brain surgery and the cavernoma has successfully been removed, Sal has been left with significant mobility difficulties and now walks with the aid of a stick and a functional electronic stimulation device. The Cavernoma Alliance UK will be a life time source of information,support and advice for both her and the fellow patients she has met since her diagnosis.

The Cavernoma Alliance UK is currently financially struggling
and needs £30,000 to meet it's current commitments. We are hoping
that our wing walking and skydiving adventures will contribute to this. On August 18th 2022 we will be undertaking a 15 000ft tandem skydive at Old Sarum, the highest available in the country!

Not content with this, and both egging each other on, we will be following this with a wing walk at Compton Abbas Airfield in Dorset on September 3rd 2022. We are hoping to raise as much money as possible for the Cavernoma Alliance UK.

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