Updated on Aug 31st 2012 at 8:45 PM from the JustGiving API

Wow can't believe just 2 days to go! Exciting and nervous at the same time! Still plenty of time left to sponsor me & please share link :) x

Duchenne Muscular Dystrophy (DMD) is a genetic condition which affects the muscles, causing muscle weakness. It is a serious condition which starts in early childhood. The muscle weakness is mainly in the 'proximal' muscles, which are those near the trunk of the body, around the hips and the shoulders. This means that fine movements, such as those using the hands and fingers, are less affected than movements like walking, standing up, climbing or running.

There is no cure for DMD at present. However, treatments & clinical research may help.

There are lots of families out there who have sufferers of DMD but one family in particular is close to my heart and that's 'The Edmonds' (Lisa, Rob and their son Cameron)  Cameron (aka Cam) is just 12 years old and has Duchenne Muscular Dystrophy, and is not expected to live much past his 21st birthday. Cam is deteriorating fast, and has just recently moved into a new bungalow which is helping make simple things we take for granted much easier such as going up the stairs and having a shower. However just recently Cam had a bad fall and ended up breaking his leg and is currently in hospital and being monitored due to having DMD, even just pain medication can be harmful as can affect his respiratory.

Since Cam has broke his leg, this now means he won't walk again, all muscles will have died by the time the cast comes off. By 18 he will be totally dependant, all muscles will be dead, and he will be on oxygen to help him breathe, by 21 his last muscle to give up will be his heart, this is the strongest muscle, or the common cold will lead to pneumonia and eventually take his life. The only part of his body not a muscle is the brain, so through all this and all the pain he will be in, even when he can no longer talk, he will know exactly what's going on, and how much pain he is in. It's Bad enough watching an animal die this way, let alone a child!!! 

So please, dontate what you can and lets help fund clinical research so that we can find a cure for DMD and save an extra life!

"To Love, To Fight and To Live! - Motto by Lisa Edmonds

For more information please go to www.duchennenow.org

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