Claire and Steve's London Landmarks Half Marathon Page
Claire Wright is raising money for The Lily Foundation
Participants: Steve Thornley, Claire Wright
Story
On the 25th March 2018 Claire will be running her first half marathon at the grand old age of 43, almost exactly a year from having her little rainbow Charlotte.
Superman Steve, will be running (in his slippers at the rate Claire runs) with her and will be a massive motivation along the way. As you may know Steve is officially an Iron Man!
But their real motivation is Jacob. Claire and Bobs son and charlottes big brother who was taken at the age of just 16 months by Mitochondrial Disease. This cruel debilitating disease took everything from him including his smile. It meant he was having seizures up to 20 times a day and night for up to 20 minutes at a time. No parent should have to hold their baby as they take their last breath. No child should have to go through what he did.
His strength and determination was incredible and the discomfort of a half marathon is nothing compared to what Jacob and all the other children affected by this condition have to deal with.
10 million people in the UK suffer from diseases in which mitochondrial dysfunction is believed to be involved, while every day in the UK a baby is born who will develop mitochondrial disease. There is no treatment and no cure. It is lifelimiting. The Lily Foundation is fighting to change this, and we want to help them.
We need to raise £600. So please donate what you can. Maybe go without a takeaway or a few coffees. Help us help make difference.
Thank you
Superman Steve, will be running (in his slippers at the rate Claire runs) with her and will be a massive motivation along the way. As you may know Steve is officially an Iron Man!
But their real motivation is Jacob. Claire and Bobs son and charlottes big brother who was taken at the age of just 16 months by Mitochondrial Disease. This cruel debilitating disease took everything from him including his smile. It meant he was having seizures up to 20 times a day and night for up to 20 minutes at a time. No parent should have to hold their baby as they take their last breath. No child should have to go through what he did.
His strength and determination was incredible and the discomfort of a half marathon is nothing compared to what Jacob and all the other children affected by this condition have to deal with.
10 million people in the UK suffer from diseases in which mitochondrial dysfunction is believed to be involved, while every day in the UK a baby is born who will develop mitochondrial disease. There is no treatment and no cure. It is lifelimiting. The Lily Foundation is fighting to change this, and we want to help them.
We need to raise £600. So please donate what you can. Maybe go without a takeaway or a few coffees. Help us help make difference.
Thank you
