Story
In 2011 I started having seizures. After having an MRI and tests the doctors found a cavernoma in my brain which was causing my seizures. At this point I was introduced to Cavernoma Alliance UK. Years of taking medication were not controlling my seizures so last year I made the decision to have the cavernoma removed. I'm now a year post op and want to give back to this amazing charity that have supported me through my journey along with my family, friends and my colleagues at Specsavers.
A cavernoma is made up of abnormal blood vessels and can be found in the brain and/or spinal cord and looks like a raspberry. People who experience symptoms are considered to have a rare condition. An ongoing study based on the entire population of Scotland, found that each year, 1 person out of 400,000 is diagnosed with a symptomatic brain cavernoma.
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