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My daughter was 12 years old when she fell ill with a rare condition called Neuromyelitis optica (NMO), also known as Devic's disease or Devic's syndrome, is a heterogeneous condition consisting of the inflammation and demyelination of the optic nerve (optic neuritis) and the spinal cord (myelitis) in which great Ormond street over the 3 years  have been fantastic and got it under control so I would like to raise some money to give back my appreciation and to help others that deserve to enjoy life.