Julie Lalou

Christmas on Park Road

Fundraising for FRAXA Research Foundation
£7,140
raised
by 133 supporters
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Christmas on Park Road , 6 January 2023
We raise funds for Fragile X Syndrome to find effective treatments and a cure.

Story

We hope you enjoy our Christmas lights! Every year we decorate to spread a little cheer and for the enjoyment of our twin boys who are diagnosed with Fragile X Syndrome.

Our aim this year is to raise some money for FRAXA who are  researching effective treatments for Fragile X Syndrome and maybe, one day, a cure. 

Any donation is hugely appreciated

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About the charity

Fragile X is the leading inherited cause of intellectual disabilities and the most common known cause of autism. Although Fragile X is virtually unknown among the general public, it affects about 1 in 4000 boys and 1 in 6000 girls worldwide. Approximately 1 in 260 women and 1 in 800 men are carriers. Fragile X can cause symptoms including extreme anxiety, hyperactivity, autism, and seizures. Remarkably, all these symptoms are caused by one missing protein which is vital for normal brain development. Prospects for treatments and a cure are excellent: if this protein could be replaced, or if a drug were found which could compensate for its absence, it would be possible to treat the disorder. FRAXA Research Foundation has funded over $24,000,000 in biomedical research, yielding discoveries which can change the lives of all families struggling with Fragile X. Donations received help support research teams around the world who are tackling this challenge.
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Donation summary

Total raised
£7,139.29
Online donations
£7,139.29
Offline donations
£0.00

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