Story
The last few years has been a roller coaster of emotions and education when it comes to Cystic fibrosis (CF) after one of my sons has been diagnosed with this as a teenager.
Statistics in CF outcomes bring a stark reminder of the impact this condition can have and as a parent, this made for difficult reading.
The CF Trust raises funds to continue vital research in treatment that can and does have a positive impact on quality and longevity of life, e.g. progress in medicines - Link to website - NHS England » ‘Miracle’ Cystic Fibrosis treatment for children on the NHS but this progress and research must be funded from somewhere.
CF is a genetic condition which causes sticky mucus to build up in the lungs and digestive system. It affects more than 10,800 people in the UK and has impacts on length and quality of life. One in 25 of us carries the faulty gene that causes it, usually without knowing. Cystic fibrosis comes with challenges, affecting physical health, mental well being and how we choose to live our lives.
This is my opportunity to use a hobby that I use to improve my well being, mental and physical health and do something to give back to a Trust that needs this vital funding.
Thank you so much for your support.