The Huntington's Disease Association supports anyone who is affected by Huntington's disease across England and Wales. We pursue the best possible care; provide training & advice to families and professionals; raise awareness, and promote research towards better treatment and care.

Huntington’s Disease is a rare, genetic neurological disease that causes changes with movement, learning, thinking and emotions. Huntington’s is progressive meaning that it gets worse over time and there currently isn’t treatment to slow down the progression of the disease. The Huntington’s Disease Association (HDA) is the only charity in England and Wales to provide support to families impacted by Huntington’s and they do the most fantastic job, as well as providing education to health care professionals. I can vouch for the support they provide as I have a family history of Huntington’s. The HDA’s Specialist Youth Worker supports young people impacted by Huntington’s aged 8-25, and is the only member of staff in the youth service and their caseload covers the whole of England and Wales, yet they still manage to provide support, advocacy and education with such a high level of compassion and trust!

The work that the HDA do is truly invaluable and so I have signed up to climb Ben Nevis, Scafell Pike and Snowdon with three other young adults impacted by Huntington’s over a weekend in August - check out our team page to see our total so far! :) Please donate if you can!