SO PEOPLE, DIG DEEP!!! As most of you know my Grandson, Eli, has been diagnosed with PCD, Primary Ciliary Dyskinesia. PCD is a rare, inherited condition that affects several organs and gets worse over time. Children with PCD have a problem with mucus build-up, which leads to inflammation in the airways and infections in the lungs, nose, sinuses and ears. This is a life long illness. There is no cure. At present the only treatment for PCD is chest physiotherapy to try and prevent and slow lung function decline. PCD is a life altering and life shortening condition. Children and adults with PCD may look healthy, unfortunately PCD is a progressive disease where lung function declines over time. People with PCD face huge challenges from the disease, the treatment burden of daily chest physio and frequent course of antibiotics in an attempt to reduce the rate of lung function decline.

Eli was born on 30th November 2021 and was on oxygen for the first 5 weeks of his life in the Neonatal unit because of this disease. He has to have physio minimum of twice a day to help shift the mucus to prevent build up and to prevent infections, this is done by his amazing parents Lauren Horton and Kyle Shane Horton. He still gets on going infections now, so imagine how he would be without the physio! He has regular hospital visits and drs visits and ongoing antibiotics. This disease effect 1 in 15,000  people in the UK. This make my grandson unique and precious. 

Me and Kathryn Marshall are running 10km in June to help raise awareness and funds for this disease that is rarely known by others. We thought June so we can train and build up as we haven’t ran in a while haha!
I am setting up a just giving page for people that would like to donate so we can raise awareness for this cause and help children like my grandson to lead a full and happy life. Thank you xxx