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Thank you for taking the time to visit The Hutton's 100K in May JustGiving page.
Me, and my parents (Steve and Berny) are each running 100k this month to raise money and awareness for the Darby Rimmer MND Foundation. The Foundation has been set up by Stephen Darby and Chris Rimmer two young lads that have been diagnosed with MND and are inspirationally attacking the disease head on whilst raising money and awareness of this awful disease. As you will know, our family are all big Bradford City fans and Stephen was a stalwart right back for City who we enjoyed watching wear the claret and amber colours with distinction for many years.
So far the challenge is going well with Mum and Dad clocking the miles/km's in hilly West Yorkshire whilst I'm running the streets of South West London (slightly flatter terrain !). We have just over 2 weeks left of the challenge and although the joints are starting to ache a bit, we are gradually ticking off the distance day by day. Your support and donations is keeping all of us going and every penny is really appreciated by my family! For anyone that wants to know more about this fantastic cause, please read below.
Follow our progress on social media, look for the #'s - #100kinMay and #AttackMND.
Motor Neurone Disease (MND) is a neurological condition which affects the nerves in the brain and spinal cord. MND affects a person's arms and legs resulting in the inability to do basic things like wash, feed and dress yourself. It affects your ability to swallow which leads to the need of a feeding tube. It compromises your voice which means communicating is difficult. Breathing muscles are also affected, which leaves you relying on a ventilator to breathe. All these symptoms occur whilst your mind is unaffected. The average life expectancy is just 2-5 years from the onset of symptoms with 1/3 of people diagnosed dying within 1.5 - 2 years.
There is no known cause of MND and there is no cure or effective treatment, it's always fatal. There is a serious lack of awareness and more importantly funding. The Darby Rimmer Foundation aims to raise awareness of the disease whilst fundraising to support those effected and fund much needed research. There is a lot of research going on and the signs are promising for treatments in the future.
Thank You
Charlie, Steve & Bern
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