The Lily Foundation was founded in Lily's memory, having lost her battle to Mitochondrial Disease at just eight months old. The charity aims to give hope, answers and support to the many other children and families that face the challenges of this disease today.
Did you know every twenty minutes a child is born who will develop Mitochondrial Disease by the age of 16! There is no cure for this disease which is for many, debilitating and life limiting.
Please stand with us and fight Mitochondrial Disease and fight for hope.
On the 22nd April 2018 I will be taking part in the London marathon to raise money for the Lilly foundation. This charity is something very close to my families heart. My sister looks after a little boy called Arthur who sadly has this awful life limiting disease, also my mum who works at a special needs school sadly lost a little girl called Keira at the young age of 5. I would love to raise as much money as possible to be 1 step closer to finally finding a cure for this horrible disease, every penny will make a huge difference!