Story
Thanks for taking the time to visit my JustGiving page.
Please help me raise money for the Debra Chairy. The Debra charity is a great help.to my family as my 5 year old nephew suffer from this condition at its worst.
Epidermolysis Bullosa (EB) is a group of genetic skin conditions which cause the skin to blister and tear at the slightest touch.
Painful open wounds and sores form where this exceptionally fragile skin is damaged – in some cases, internal linings and organs are also affected. Complications as a result of secondary infection and extensive scarring are factors that people living with EB often have to face.
Tragically, certain types of EB can be fatal in infancy and others are severely life-limiting. We estimate that there are more than 5,000 people living with EB in the UK, and 500,000 worldwIfe.
There is currently no known cure for EB. At DEBRA, our work is focused on funding research to change this, while also supporting people living with EB to enhance their lifestyle.
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity. So it’s the most efficient way to donate – saving time and cutting costs for the charity.