Story
Thank you for stopping by to learn more about Charlie and Angelman Syndrome.
Charlie is a 3 year old girl who loves all things typical little girls love, stickers, music, her friends, and her baby brother Lincoln. One thing that is different in Charlie, is she is missing a single gene on her 15th chromosome, which makes motor movements challenging and is why she does not speak. Charlie uses a talker (AAC device) to communicate, but deserves more.
Better Days Are Coming! FAST researchers know exactly what causes Angelman syndrome (AS) and have already cured it in the laboratory. Much of this pioneering, critical research was funded by our FAST community. Today, this research has led to the announcement of several revolutionary clinical trials that hold the potential to treat, and ultimately cure this rare disorder.
Please help me support this critical research that CAN make a significant difference in the life of my loved one living with AS by clicking the Give Now button and donating whatever you CAN. Every amount is appreciated and gets us closer to our goal! The more people that know about FAST, the greater the impact, so please spread the word by sharing this page.
Your donation to my page will help fund critical research to accelerate the therapeutic pipeline that will benefit all individuals living with AS, regardless of age or genotype. Thank you in advance for your generosity!