Julie Bliss
Charlee's Cancer Ride!
Fundraising for Young Lives vs Cancer
Story
I am 13 years old and I was diagnosed on the 8th May with Ewings Sarcoma (Bone Cancer). I started Chemotherapy the day after on the drugs called V.I.D.E. I go into hospital every 3 weeks for this treatment and I've had 6 courses of it (18 weeks).
I am soon to start radiotherapy on my right hip and my lungs. I have to have it on my lungs as a few small dots were found on my first MRI and disappeared on my second one. They want to do treatment on them just to be safe for the future. During my radiotherapy cycle I will be having chemotherapy as well. This one wont be as strong as there's only 3 drugs.
When we found a lump in my right hip we didn't think much of it until we went to the doctors for my second check up. He hit us straight with it "I think this could be cancer". Me and my mum were very shocked and it ended up in a lot of tears. My heart was smashed into a million pieces. A few weeks after my biopsy my consultant told us it was cancer. I wasn't as shocked as it was kind of expected.
Its been a mixed emotional roller-coaster but I've met amazing people and its forced me to grow up faster.
Loosing my hair was hard for me, very hard. It started going on my first cycle of chemotherapy, a week after coming home. I got upset seeing it on my pillow and in my hair brush and decided to just shave it all off. After shaving it off I was much happier as I have a lovely wig from Little Princesses Trust.
I have a 'Wiggle' in my chest where all my drugs go into. Its actually called a Hickman Line. It's just easier than having a needle all the time. Sometimes I need blood transfusions which brings back colour in my face and energy. Blood transfusions can take up to 4 hours!! I normally have 4 units of blood.
I am being treated at Bristol Children's Hospital. All the staff here are lovely and always put a smile on my face. They do everything possible to make me better and are helping me kick my nasty friend's butt. I love being on ward 35 as all the nurses are so nice and bubbly and the ward is outstanding!!! The play specialists make my stays at the hospital very fun and creative by giving me loads of arts and crafts to do. Also the play specialist on day beds gave me The Beads Of Courage, for everything I have done from MRI's to Blood Transfusions I get a bead of courage. I really enjoy collecting them and putting them all together.
During my 4th cycle of chemotherapy, it wasn't so great. I had a fit whilst sleeping. I can't remember having it, but mum told me. They said it didn't last longer then 5 minutes, but mum said it felt like forever to her. If it wasn't for my mum waking up to the sound of my bed rattling, it wouldn't have been noticed. I can remember being very confused when I finished fitting but that's all. Mum said I was being sick, punching myself in the face and nastily bit my tongue. It took me about an hour and a half to come back around from my confusion. After then I was terrified to sleep for a while. It scared me. Having a fit on my 4th cycle then made me really anxious to have chemotherapy on the 5th cycle. There was a lot of sleepless and tearful nights on that cycle. I am still nervous to have chemotherapy again but I was checked every 30 minutes by my nurses to make sure I was fine.
I would like to raise money for CLIC as I have had amazing help from my CLIC nurse, Ken and my CLIC social worker, Anne. All the donations go straight to their charity.
So please help us raise as much money as possible so I can give back to this wonderful charity.
I am super thankful to my mum, Julie Bliss for being super duper supportive and to all my family and friends. When I finish treatment we are hoping to do a massive party with auctions, raffles and other things to raise some more money to give towards all the other little charity's that have helped me and my family.
-Charlee Bliss.
I am soon to start radiotherapy on my right hip and my lungs. I have to have it on my lungs as a few small dots were found on my first MRI and disappeared on my second one. They want to do treatment on them just to be safe for the future. During my radiotherapy cycle I will be having chemotherapy as well. This one wont be as strong as there's only 3 drugs.
When we found a lump in my right hip we didn't think much of it until we went to the doctors for my second check up. He hit us straight with it "I think this could be cancer". Me and my mum were very shocked and it ended up in a lot of tears. My heart was smashed into a million pieces. A few weeks after my biopsy my consultant told us it was cancer. I wasn't as shocked as it was kind of expected.
Its been a mixed emotional roller-coaster but I've met amazing people and its forced me to grow up faster.
Loosing my hair was hard for me, very hard. It started going on my first cycle of chemotherapy, a week after coming home. I got upset seeing it on my pillow and in my hair brush and decided to just shave it all off. After shaving it off I was much happier as I have a lovely wig from Little Princesses Trust.
I have a 'Wiggle' in my chest where all my drugs go into. Its actually called a Hickman Line. It's just easier than having a needle all the time. Sometimes I need blood transfusions which brings back colour in my face and energy. Blood transfusions can take up to 4 hours!! I normally have 4 units of blood.
I am being treated at Bristol Children's Hospital. All the staff here are lovely and always put a smile on my face. They do everything possible to make me better and are helping me kick my nasty friend's butt. I love being on ward 35 as all the nurses are so nice and bubbly and the ward is outstanding!!! The play specialists make my stays at the hospital very fun and creative by giving me loads of arts and crafts to do. Also the play specialist on day beds gave me The Beads Of Courage, for everything I have done from MRI's to Blood Transfusions I get a bead of courage. I really enjoy collecting them and putting them all together.
During my 4th cycle of chemotherapy, it wasn't so great. I had a fit whilst sleeping. I can't remember having it, but mum told me. They said it didn't last longer then 5 minutes, but mum said it felt like forever to her. If it wasn't for my mum waking up to the sound of my bed rattling, it wouldn't have been noticed. I can remember being very confused when I finished fitting but that's all. Mum said I was being sick, punching myself in the face and nastily bit my tongue. It took me about an hour and a half to come back around from my confusion. After then I was terrified to sleep for a while. It scared me. Having a fit on my 4th cycle then made me really anxious to have chemotherapy on the 5th cycle. There was a lot of sleepless and tearful nights on that cycle. I am still nervous to have chemotherapy again but I was checked every 30 minutes by my nurses to make sure I was fine.
I would like to raise money for CLIC as I have had amazing help from my CLIC nurse, Ken and my CLIC social worker, Anne. All the donations go straight to their charity.
So please help us raise as much money as possible so I can give back to this wonderful charity.
I am super thankful to my mum, Julie Bliss for being super duper supportive and to all my family and friends. When I finish treatment we are hoping to do a massive party with auctions, raffles and other things to raise some more money to give towards all the other little charity's that have helped me and my family.
-Charlee Bliss.