Celia Dawson

Celia's page

Fundraising for Reverse Rett
£275
raised of £250 target
Donations cannot currently be made to this page
Event: Thames Bridges Trek, on 9 September 2017
Reverse Rett

Verified by JustGiving

RCN 1136809
We 're working to bring treatments for Rett Syndrome home

Story

Thanks for taking the time to visit my JustGiving page. Hannah attended Cricket Green School and she has this condition called Rett Syndrome. In short, girls with Rett Syndrome start off like any other girls but slowly slowly abilities and bodily functions start to go backwards and do not function anymore. Hannah spoke 30 words at one stage and climbed up climbing frames, sofas and our living room table, but is unable to say any words today, and she has  lost her mobility almost entirely. Hannah is trapped in her own body as she has very limited abilities to communicate with us if so just for the most common things. 

THERE IS HOPE! Rett Syndrome has been reversed in the lab and Reverse Rett is working together with some of the cleverest scientists and companies in the field. 95 pence of each pound is going directly to a lab either here in the UK or  overseas. It is as simple as every pound raised keeps actual scientist in the lab working on finding the ultimate cure. And it is close! The paths are many (see more here https://reverserett.org/cure) and it is now a matter of time before an actual cure will be found not only in mice but actually in girls like my daughter Hannah.

Every donation received will take us just that little step closer to that goal. So thank you for your donation today, you are being part of something amazing. 

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About the charity

Reverse Rett

Verified by JustGiving

RCN 1136809
Reverse Rett is a patient advocacy and research organisation focused on delivering treatment for Rett Syndrome to all affected. Read more here: reverserett.org.uk For Rett Registry UK: https://www.rettregistry.uk/

Donation summary

Total raised
£275.00
+ £46.25 Gift Aid
Online donations
£275.00
Offline donations
£0.00

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