Catia Teixeira
Rare Disease Day 2019
Fundraising for Genetic Alliance UK - Rare Disease UK
Story
Hi everyone,
I want to raise funds for Rare Disease UK. My daughter Beatriz is 10yrs and she was diagnosed with a Rare Condition on her Sacral Spine called Bertolotti's Syndrome. This condition was present at birth but her first symptoms came when she was 8yrs. Is rare a child suffering from symptoms with this condition ,normally the symptoms just developed as an adult. My daughter suffers from severe pain and lack of mobility. Her diagnosed change our entire live.
You can read our story on Rare Revolution Magazine,Autumn issue.
I want to make awareness about Bertolotti's Syndrome and help rainsing funds for Rare Disease UK.
Did you know that 1 in 17 people in the UK will be affected by a Rare Disease in their lifetime and that 75% of people affected by Rare Disease are children?
Together we can help who needs! Let's make the difference!
Lot's of Love.
Catia
