Story
Every 9 days a child in the UK is diagnosed with DIPG.........
The charity Abbie's Army was formed following the tragic loss of my darling niece Abbie at the young age of 6. On 19th January 2023 she would have been 18 years old, a beautiful young lady ready to take on the world but she was taken from us all with no chance of survival from an inoperable brain tumour 'DIPG'. (Diffuse Intrinsic Pontine Glioma)
No family should have to experience the loss of a child and to see first hand what this deadly brain tumour did to my niece was nothing but cruel and something a parent should never have to experience.
There are over 120 different known types of brain cancer. DIPG or 'Diffuse Intrinsic Pontine Glioma' is the most fatal of all these brain cancer types. DIPG grows in the PONS area of the brainstem making surgery impossible. Currently there are no approved or validated 'data driven' effective treatments or a CURE available. The average survival time from diagnosis for a child remains at just 9 months.
DIPG is affecting roughly 40 children a year in the UK and with insufficient research funding from larger National charities and no direct Government funding, it is parent led charities and advocacy groups worldwide who are contributing to furthering the research effort.
It may be too late for so many families, but we can all commit to helping the DIPG families of the future. Any donation that can aid research and development of new clinical treatments to benefit these children is invaluable.
After decades of despair only the investment to find a cure will provide the hope needed for these future families.
Whatever you can do to help would be amazing.
Thankyou love Caroline x
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.