Carmela is a very happy, bright and funny 11 year old with a zest for life but struggles with daily physical obstacles.

She has L-CMD (Muscular Dystrophy) a progressive muscle wasting condition, which unfortunately will rob her of walking and using her arms efficiently in her teenage years.

Carmela's type of Muscular Dystrophy has also led to 3 further health conditions- Ventricular Tachycardia which Carmela has an inserted defibrillator next to her heart as we nearly lost her to a cardiac arrest year 2024. Lipodystrophy which can cause organ failure, especially the Liver and Pancreas. And now the Lipodystrophy has caused Carmela to be insulin resistance so now has Type 1 diabetes. Carmela is also at risk of respiratory complications needing medical intervention.

Carmela is a very determined girl who has a heart of gold and is always wanting to help others stay strong. She coaches online physio exercises to others around the world to help them stay strong like herself. Not forgetting, Carmela has also helped MDUK raise over £400,000 since she was 4 years old and her fundraising for her hospice.

Carmela has ambitions and dreams and one of those dreams is to be a model who can be seen on a high street shop poster to help spread #inclusivefashion to help inspire young children like her.

After nearly 4 years of no jobs through 2 model agencies, Bristol Fashion Show said they would love to have Carmela model at their fashion show. Carmela first appeared at the show just age 5.

Carmela absolutely soaks up the attention and atmosphere and will be appearing at the Bristol Fashion show for a 4th year to help raise money for children like her living with a progressive muscle wasting condition.

LMNA Congenital Muscular Dystrophy is a very rare progressive muscle wasting condition which affects just 1 in a million children around the world. It affects children with different severities. Some children lose their battle early on in childhood, some make it to late teens and some children can make it to adulthood with the help of specialist intervention to help with breathing and heart complications. 

LMNA is the gene which produces protein to help strengthen muscles is what these children don't have. Which is why we need your help to raise vital research money to fund projects costing around £6000 a month to research a treatment or cure in to this rare condition to help these children have hope of a longer life or even a treatment to make it easier for them to cope.  

Carmela enjoys the fast lane such as whizzing down the hills on the back of mummy's bike and being as active as possible doing disability sports. She is very sociable and is always smiling and pretty much anything excites her. But there are days she goes to a dark place because she is so fed up with her body and health limitations.

As a family we want to help Carmela and other children with L-CMD to stay strong and fight for a cure but we need the help of others to make this happen. 

Please show your support and join us in raising money for Muscular Dystrophy UK so that research into this rare condition can happen. You can either donate to this page or start your own fundraising challenge by clicking in the button above.   

Let’s stand up to Muscular Dystrophy together.