Story
Carmela has to carry out physical therapy exercises daily to help reduce joint and muscle pain and discomfort as her condition weakens every muscle in her body. It also helps her stay mobile for as long as possible until she is unable to walk and use her arms independently.
But with lockdown, her usual physical classes are cancelled and having no school is a big reduction in her therapy to help keep joint contractures and extreme fatigue at bay.
With this in mind, we have come up with a challenge to help keep her daily physio different, fun and motivating and knowing there are many others out there like Carmela who rely on regular gentle exercises, we thought you would like to join Carmela who will be sharing a different gentle physical therapy exercise
everyday for 100 days.
This challenge we are hoping to raise vital funds for medical
research in to Carmela's life limiting progressive muscle wasting condition called LMNA-Congenital Muscular Dystrophy which only affects around 1 in every million!!!. Some children lose their lives very early on due to breathing and heart complications from birth and others who develop fine the first few years lose the ability to walk eventually. All other muscles waste away causing loss of independence in most aspects of life and require intervention with help breathing and some a pacemaker. This condition has an average life expectancy of late teens.
To take
part in this very simple yet effective challenge over 3.5 months which you
can join in at any time, please make a donation here to Carmela’s registered
charity JustGiving link ‘100 One A Day Challenge’
A different exercise will be posted everyday for 100 days 'Carmela’s Stand Up To Muscular Dystrophy.’
Please share your photos or videos and use the hashtags #100Challenge #MusclesMatter
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