Carmela Chillery-Watson

Carmela's Wonder Woman 2000km Walk

Fundraising for Muscular Dystrophy UK
£17,609
raised of £6,000 target
Donations cannot currently be made to this page
WalkWithCarmela 2000km, 1 September 2020
Cure4Carmela
Campaign by Muscular Dystrophy UK (RCN 205395 (England and Wales) - SC039445 (Scotland))
Will you join Carmela & her team to Stand Up To LMNA Congenital Muscular Dystrophy?

Story

MDUK's Campaign 'WalkWithCarmela' gets stepped up a gear by Carmela 1st September. 

Carmela and her team of sidekicks will be covering 2000km in 30 days. Carmela alone with do 300km with the help of mummy as Carmela can only cope with around 0.5 to 1km a day.

To show your support please either share, donate or purchase one of the WalkWithCarmela orange Tshirts as all proceeds go to Muscular Dystrophy UK. These can be purchased from OHM Charities. Refer to the photos on here to see what they look like.

Sidekicks-- Dotte Barrow, Neil Barrow, David Williamson, Elaine Barrow, Anthony Snook, Sarah Garcia Thunderbolt, Dean Sheldon Cha, Esther Snook. 

Carmela is a very happy, bright and funny little girl with a zest for life but she struggles with daily obstacles. She has L-CMD (Muscular Dystrophy) which is a progressive muscle wasting disease which weakens every muscle over time affecting the ability to walk, use their arms/hands and unfortunately will weaken the heart and respiratory muscles and most likely not make adult life. 

Carmela fundraises endlessly for Muscular Dystrophy hoping for a treatment or cure in to her fatal condition but this challenge is by far her biggest. Carmela's favourite superhero is Wonderwoman who inspires her daily to keep fighting to stay strong and fight on so has decided to walk/wheelchair the distance it takes to get to Wonderwomans home in the film in Italy as she would so like to meet her one day. 

With the help of some fabulous friends they will all be sharing the 2000 kilometres to achieve the distance. 

Carmela and mummy are doing 300km in 30 days which is the equivalent of 7 Marathons!! 

Please help Carmelas future ambitions of becoming a garden designer and help raise the shortfall she needs for research in to her condition to help her and others like her have hope of their dreams coming true. Research costs around £6000 a month. Only 10 days in to the challenge we have already reached our target for one months research but finding a cure or treatment does takes years so please help share my story to see how many months research we can raise and help give hope to these few children have a future. 

LMNA Congenital Muscular Dystrophy is a very rare progressive muscle wasting condition which affects just 1 in a million children around the world. It affects children with different severities. Some children lose their battle early on in childhood, some make it to late teens and some children can make it to adulthood with the help of specialist intervention to help with breathing and heart complications. 

LMNA is the gene which produces protein to help strengthen muscles is what these children don't have. Which is why we need your help to raise vital research money to fund projects costing around £6000 a month to research a treatment or cure in to this rare condition to help these children have hope of a longer life or even a treatment to make it easier for them to cope.  

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About the campaign

Will you join Carmela & her team to Stand Up To LMNA Congenital Muscular Dystrophy?

About the charity

Muscular Dystrophy UK

Verified by JustGiving

RCN 205395 (England and Wales) - SC039445 (Scotland)
Muscular Dystrophy UK is the charity bringing individuals, families and professionals together to beat muscle-wasting conditions.

Donation summary

Total raised
£17,608.82
+ £2,564.50 Gift Aid
Online donations
£17,608.82
Offline donations
£0.00

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