Story
On 18th February 2014 I was lucky enough to be blessed with a beautiful healthy baby boy. Whilst I had been aware of the Lily foundation it wasn't until Maxwell was born that Lily's story became so real to me.
Recent research has shown that 1 in 200 healthy newborns in the UK are born with genetic changes that can cause Mitochondrial Disease and are at risk of passing these changes onto their offspring.
Lily Anna Merritt was a beautiful little girl and despite being given days to live, she graced this world with eight months of life. The Lily Foundation was built on Lily's strength and inspired by her fighting spirit. Although The Lily Foundation was founded in Lily's memory, it is not for Lily. It is to give hope, answers and support to the many other children and families that face the challenges of this disease today.
There is no cure or treatment for Mitochondrial Disease.
Running this half marathon is no easy task for me, my personal limit has been about12k (pre baby)! I wouldn't say I'm excited by the prospect of 13 miles, but I'm delighted to be running for the Lily foundation and I'll give it my best go!
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