Carl's page

Carl Darby is raising money for Ring20 Research and Support UK
£3,195
raised
Donations cannot currently be made to this page

Great Birmingham Half Marathon 2023 · 7 May 2023 ·

We promote research, education & support to end un- and misdiagnosed epilepsy

Story

As many of you will know, Lily, my youngest daughter has Ring20 Chromosome Syndrome.  Symptoms include intractable epilepsy (10+ seizures per day is not unusual) and learning and behaviour difficulties.  She is an absolute star, a fighter....nothing holds her back.  Her resilience is on another level.

Ring20 Research and Support UK do a huge amount for people with R20 syndrome.  From family support & information sharing to partnerships with Global Research Organisations, working towards a cure, a small donation goes a really long way to help.  

Any donation is hugely appreciated.

Thank you.



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About the charity

Supporting individuals, families and healthcare professionals who are affected by, or who come into contact with Ring Chromosome 20 Syndrome or r(20) – a rare epilepsy syndrome. We provide information via our website www.ring20researchsupport.co.uk, social media and events and promote research.

Donation summary

Total
£3,194.39
+ £656.96 Gift Aid
Online
£3,194.39
Offline
£0.00

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