Carina's Walk for Endo page

Walk for Endo · 6 July 2020
Hello All 😊 Thank you for taking the time to visit my page.
From 6th July – 1st September I will be walking 7.5 km for Endometriosis UK .
Why 7.5? That’s because it takes on average 7 .5 years to get diagnosed with this life long condition that affects 1 in 10 women. This is too long and needs to change, but it can only be achieved with awareness raised and more research.
So I am aiming to walk 7.5 km each week come rain or shine in solidarity with the 1.5 million living with this condition.
A little bit about me 😊
Those who have known me a while will know my journey with Endometriosis has been a long one.
I have been living with this debilitating condition for 16 years , 5 with an officially diagnosis and only 9 months of that under the care of the
specialist Endo clinic.
Like many I first started having symptoms at 11 but wasn’t diagnosed till 21. Unfortunately at this time I was also found to have Adenomyosis (considered the evil twin of Endometriosis) which is currently only curable with a hysterectomy.
Living with Endometriosis from a young age was isolating and with not much known or learnt about in school, there were a great many years of feeling alone, abnormal and like I was 'making a fuss'. It has been a battle; with doctors, employers, education and the like to understand that this condition is not just ‘bad cramps’. It is a condition with bouts of extreme fatigue, bloating, severe pain, brain fog, severe bleeding, excessive sweating, hot flashes, mood swings, headaches and depression to name a few of the things that come with it. It can also lead to all kinds of bladder and bowel problems, not to mention infertility.
To date I have had 4 laparoscopies, the last of which was last year when I had a cyst bigger than my ovary removed and a lengthy 4 hour operation to unstick things. As gruesome as it all sounds, this is the reality of the treatment and condition that not enough is know about. For me it was a relief after being on a concoction of painkillers for almost a year and spending the latter half of the year almost bedbound from the pain.
It was an incredibly tough year, the worst since my diagnosis, but Endometriosis UK gave me the knowledge and confidence to fight to be seen by the right people and for the treatment I needed. Without them I would still be in agony and in much worse health.
Now I am fully mobile again and as pain free as I
can be, I want to do something to give back for the support Endometriosis UK gives many like myself.
Endometriosis UK is a lifeline for those just learning and those living and all who's lives are touched by this condition.
All money raised will go to them so that they can continue their wonderful work raising awareness, supporting and letting more women like myself know they are not alone in this.
Thanks :-)
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