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Cara Rose has SMA Type 1. Also known as severe Infantile Spinal Muscular Atrophy (or Werdnigg Hoffman Disease) it's a devastating, genetic disease and is the leading genetic killer of infants and toddlers in the UK. 

SMA Type 1 is the most severe form of the disease and is generally picked up by the time a baby reaches 6 months old, it manifests itself in severe weakness resulting in difficulty moving, eating, swallowing and breathing - but whilst children with SMA have limited movement, their brains are completely unaffected and they communicate through their big beautiful eyes and beaming smiles. They are very alert and make up for their physical disabilities with their facial expressions, and they love to play just like any other child. Cara's smile simply lights up a room.

The SMA Trust is a charity that has become close to my heart since Cara Rose, the third child of my good friends Sandra and Lee, was diagnosed with SMA Type 1 earlier this year. Following her diagnosis I have done my best to discover as much as I could about this terrible disease and now want to do my part to help raise funds and awareness amongst my friends and family. To find out more take a look at The SMA Trust Website

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So please dig deep and donate now.