Brett DeAlwis

Brett's Ultra North 25 page

Fundraising for Alpha-1 UK Support Group
£650
raised
Donations cannot currently be made to this page
Ultra North 25, 16 July 2022
Alpha-1 UK Support Group

Verified by JustGiving

RCN 1146330
We Provide support to patients and families to improve quality of life.

Story

I am looking to run (more likely crawl) the Ultra North 25 k trail in July. I am doing this in aid of Alpha-1 antitrypsin deficiency. Which is an extremely rare genetic lung disease. There is very little known about the condition, and at this stage I believe no known cure. There is little exposure and funds to support such an amazing charity. This condition affects those closest to me and is extremely hard for those who have been diagnosed to live/deal with. Just to get the name out there is great, but if anybody would like to donate that would also be amazing. 

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About the charity

Alpha-1 UK Support Group

Verified by JustGiving

RCN 1146330
We offer support and practical help to patients, families, carers and friends of those diagnosed with the genetic condition Alpha-1 Antitrypsin Deficiency.

Donation summary

Total raised
£650.00
+ £100.00 Gift Aid
Online donations
£650.00
Offline donations
£0.00

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