Team Tommy

Brenda Knox is raising money for Just4Children

Participants: Brenda, Gillian, Alison, Chloe, Kerry, Laura, Fiona and Louise

£1,352
raised of £1,000 target
Donations cannot currently be made to this page

Edinburgh Kiltwalk 2023 · 17 September 2023 ·

Tommy's Tomorrow
Campaign by Just4Children (RCN 1164473)
Tommy needs therapies and intervention such as Intensive Neuro Movement Therapy, brain plasticity therapy, equipment, home adaptions and adapted toys to give him a fighting chance to thrive.

Story

At 32 weeks our Tommy and his identical brother Joe were born. Joe born still and Tommy fighting for his life. In the couple of days leading up to their birth, unknown to anyone, the twins became affected by Twin to Twin Transfusion syndrome (TTTS). The situation was chronic. It happened and then it was too late. It was unexpected and immediate. Unfortunately, Tommy was not left unscathed and as a direct result of the TTTS, he suffered a catastrophic bilateral brain injury and since has been diagnosed with Cerebral Visual Impairment, Global Developmental Delay, Cerebral Palsy and he is predominately tube fed via Gastrostomy. Of course we know none of these conditions are curable. However, we also know all that early intervention can help and so are working hard in attempt to do what we can to help Tommy thrive. Tommy has so much potential it hurts. The input and support Tommy receives from public services is a blessing. Those who work with Tommy work hard and care about his progress, however some of things his parents do and want to do with Tommy are just not available via NHS, things which have strong evidence of success with other children and that we believe will help. Therapies and intervention such as Intensive Neuro Movement Therapy, brain plasticity therapy, equipment, home adaptions and adapted toys costs well over £10,000 per year.  Please be assured your help will absolutely give Tommy a fighting chance to thrive. Your help could literally change his life.

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Donation summary

Total
£1,351.30
+ £107.50 Gift Aid
Online
£1,351.30
Offline
£0.00

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