Our son Boston was diagnosed with AADC deficiency a year ago on May 5th. He was the 131st person in the world ever diagnosed with this terrible disease. This week is meant to bring awareness to those who are unaware about this disease and to raise money for the AADC Research Trust in funding the research that is being done to find a cure for this devastating disease. May 21-27 please support our precious Boston and the other children suffering from AADC deficiency by wearing blue! If you’re able to donate to the AADC Research Trust, that would be greatly appreciated! Every penny counts! 💙 We need to bring awareness to this rare brain disease so that Boston and others diagnosed with AADC can get the proper care and treatment that they so desperately need! 

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