"Alone we can do so little; together we can do so much." - HELLEN KELLER   

Some of you may know Ryan, but for those of you who don't -- you're missing out on knowing a wonderful young man. He has a great sense of humor and often makes others (and himself) laugh!!  His joy for living brightens the world around him. However, because he has this life-threatening disease, his future is unknown. 

Research is the key to finding answers. Thanks to our dedicated physicians, researchers, and supportive donors we are making great strides -- but we still do not have a long-term treatment or cure.

Please help us accelerate this critical research and the continued support for the 150+ families that are affected by TANGO2 disease.  

With gratitude,

Lynn