I went to school with Sadie's mum, Rachel. After following their journey for quite a while, I've decided that now is the time to get involved and do my bit to help them all out.

Richard Roberts-Jones (A GB Running Champion and World Record Holder) will be getting involved in the first run and may well participate in the others as well.

We have set a target of £500 initially, however I am pretty sure we will smash that.

Every single donation, no matter how big or small, will make a huge difference and will allow Sadie to get the most out of life as possible.

We are looking forward to raising as much as we can!

Please see below a message from Sadie's parents:

"My beautiful daughter has been diagnosed with a type
of Leukodystrophy called Pelizaeus-merzbacher (PMD) which is a rare genetic disorder. PMD is a disorder that affects the brain and spinal cord and it is characterized by problems with coordination, motor skills and learning. PMD in generally more found within boys making my daughters case even more rare. This is something she was born with and we have been fighting ever since she was 3 months old to finally find a diagnosis to know how to move forward. The problem being the consultants are not sure how she may or may not develop due to most
cases being within boys not girls so we are still none the wiser.

We have continually been going backwards and forward to Great Ormand Street for all sorts of different tests to finally get a diagnosis, one most important trip being to have a gasostromy button fitted in her tummy to be able to feed her. Ever since Sadie was born she has had problems with feeding she was just not interested what so ever! But because of this she was losing weight. So she had a NG feeding tube fitted but was still not tolerating high volumes of milk so three months later she had her gasostromy peg fitted and it's been a blessing! She is now tolerating her milk so much better and is slowing putting on the weight! 

Sadie is such a happy loving little girl who is always smiling and we just want the best for her and to give her as much opportunity for progression as possible. Which is why we are wanting to raise as much money as we can to be able to pay for private physio which unfortunately does not come cheap and then eventually get her different equipment she will need in the future. 

We have a Facebook and Instagram page called The life of Sadie Chittock for anyone interested in following her progress.

Thanks for taking the time to read our little girls story"

Grateful for every single donation.

Thanks,

Ben Bailey