Ben Licence

Ben is fundraising for Team Rory...

Fundraising for CCLG
£1,262
raised of £1,000 target
Donations cannot currently be made to this page
Event: Manchester Marathon 2021, on 10 October 2021
Team Rory
Campaign by CCLG (RCN 1182637, SC049948)
Team Rory is a Special Named Fund at CCLG supporting research into medulloblastoma.

Story

After doing the London marathon in 2014 I decided I would like to try it once more before I hit the big 4-0 (COVID ended up stopping that but I'll only be a month or so off)!!! 

Having applied for London for 7 years and never get a place I thought I'd give my hometown one a try instead (added bonus, Manchester is one of the flattest marathons in Europe apparently), so for one last time I have come to bother you lovely people for sponsorship. 

I am raising money for Team Rory, in support of The Childrens Cancer and Leukemia Group. Team Rory is a charity set up by my Friend Matt and his partner Amy after the devastating loss of their son Rory last January, please read their story below - 

"In May 2019 we gave birth to our first child, a gorgeous little boy who we named Rory. Four and a half months later, following various investigations at Bristol Eye Hospital for what we thought was a lazy eye, Rory was referred for an urgent MRI scan and quickly diagnosed with a tumour on his brain stem. Under the care of the neurosciences team at Bristol Royal Hospital for Children he underwent major brain stem surgery to biopsy the tumour and attempt to remove as much of it as possible. The surgeons performed a successful biopsy and a partial resection, but felt that they couldn’t safely remove the entirety of the tumour without leaving Rory with catastrophic side effects.

We were devastated to learn that the biopsy result showed that the tumour was medulloblastoma, an aggressive type of high grade cancer very rarely seen in babies. Rory was too young to undergo any radiotherapy treatment for the cancer, and so he began an intensive and gruelling chemotherapy regime two weeks after surgery. Rory remained the coolest cucumber ever throughout all of his treatment, keeping all three of us smiling in the face of extreme adversity.

Our hearts are so very broken to share that Rory's second round of chemotherapy went horribly wrong and he was admitted to PICU on Christmas Day 2019. As a result of the intensity of his chemotherapy treatment, Rory had contracted veno-occlusive disease (VOD) which subsequently led to multiple organ failure. Our little warrior spent a brave two and a half weeks fighting for his life, but passed peacefully away on Saturday 11th January. We are raising funds in his name to research medulloblastoma, give back to the wards and charities that helped us, but also in the hope of progressing the search for kinder treatment regimes which are less likely to result in devastating side effects such as VOD.

It goes without saying that Rory will forever be our hero and our daily inspiration to live life full of purpose and love. We will do so much good in his brave, beautiful spirit."



CCLG Supporter Logo Colour.png

The Children's Cancer and Leukaemia Group (CCLG) are responsible for valuable research behind treatment for childhood cancers like Rory's and the advancement of our understanding of the disease. Alongside this, CCLG provide loads of helpful information for the whole family with regards to specific cancers and what the treatment process might look like. Any donations to Rory's CCLG fund will go towards researching medulloblastoma. 


For more information on Team Rory and the other charities they are supporting please visit their website here 

teamrory.co.uk

realise that money is really tight for a lot of people at the moment, so if you don't have the cash to spare then please consider giving this page a quick share instead, anything you can do to support this incredible charity is gratefully received.

And for all you lovely, generous people that have sponsored me so many times before for all the other silly sh*t I've decided to do, please know this. 

I promise this will be the last time!!! 

I am too old, too fat and too lazy to be doing this sort of nonsense anymore.

Thank you all so very much.

Lots of love and keep safe,

Ben xxx



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About the campaign

Team Rory
Campaign by CCLG
Team Rory is a Special Named Fund at CCLG supporting research into medulloblastoma.

About the charity

CCLG

Verified by JustGiving

RCN 1182637, SC049948
CCLG is a leading children's cancer charity and the UK and Ireland's professional association for those involved in the treatment and care of children with cancer. We work to improve treatment and care, fund and support research into childhood cancers, and support families with expert information

Donation summary

Total raised
£1,262.00
+ £491.00 Gift Aid
Online donations
£1,262.00
Offline donations
£0.00

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