I am taking part in the 100km challenge again this August. DEBRA supported my family when my two big sisters were born with Junctional EB and died in infancy and since then myself and my family continue to support and raise awareness of EB and the work DEBRA does. 

DEBRA is the national charity supporting those directly affected by, and working with, Epidermolysis Bullosa (EB) – a potentially fatal skin condition that causes constant pain due to unstoppable internal and external blistering. DEBRA provides lifelong care and support to the entire EB community.Together we #FightEB and together we will beat EB.