Story
This is the commonest group of deaths in childhood of children without known underlying medical problems and much research has been carried out to try and find the cause of cot-death. However, whilst much less common, it is not widely appreciated that children aged more than one year may also suffer from a similar condition, termed sudden unexpected death in childhood or SUDC.
In contrast to SIDS there is hardly any research investigating SUDC. In collaboration with Great Ormond Street Hospital, The Lullaby Trust has set up a specialist centre to pioneer the much needed research into SUDC.
The difference your donation could make
£5 could provide a Bereavement Support pack, helping newly bereaved parents at a difficult time by providing information on support, the experiences of other parents bereaved by sudden infant death and practical information too.
£15 could provide one hour of helpline support from trained bereavement advisers. Our helpline is free to all who contact us in need of support.
£25 could pay for the support of a trained Befriender for a family, offering them vital listening support from someone who is also bereaved.
£50 could give a family of 4 the chance to attend one of our Family Days Out, helping them meet other bereaved families. Family Days Out are held at local family venues, where everyone can get together and have a day out, remembering the babies who have died and meeting other bereaved families. We also provide information on our work and our trained Befrienders provide face-to-face support during the day.
£140 could help pay for one day of specialist training for new CONI coordinators, who will go on to support bereaved parents when the choose to have another baby.
£550 could train bereaved parents who wish to support other families as Befrienders in the future.
£1,850 could cover the cost of one of our regional Family Days Out, helping bereaved families meet in a friendly and safe environment to share experiences and gain strength from each other.
£5,000 could cover the cost of trained advisers on the free Helpline for 2 months, providing a lifeline for bereaved families.
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