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Anne and Hannah's Page

Anne Baird is raising money for Batten Disease Family Association

Participants: Anne Baird, Hannah Baird

55%
£538
raised of £500 target
Donations cannot currently be made to this page

Batten Disease Family - Sponsored Walk for Batten's 2010 · 22 May 2010 ·

We fund research and support families to find a cure to Batten disease

Story

Thanks for visiting our fundraising page.

We are doing the sponsored walk in memory of Emma, Annne's niece and Hannah's cousin. Emma died 2 years ago,  just before her 11th birthday, of Batten Disease. This is a progressive neurological disorder  in which children are born apparently normal, but from the age of about 3 gradually loose their sight, mobility, and cognitive abilities. The disease is inevitably fatal.

The Batten Disease Family Association provide support to affected families and funding for research

http://www.bdfa-uk.org.uk/index.html 

Donating through Justgiving is quick, easy and totally secure. It’s also the most efficient way to sponsor us: Batten Disease Family Association gets your money faster and, if you’re a UK taxpayer, Justgiving makes sure 25% in Gift Aid, plus a 3% supplement, are added to your donation.

So please sponsor us now!

About the charity

Batten disease is a group of rare, progressive neurodegenerative, genetic metabolic diseases that occur in children & adults worldwide. The BDFA's Vision is to be the central point of excellence in the UK for supporting affected families funding research into a potential cure.

Donation summary

Total
£538.00
+ £117.05 Gift Aid
Online
£488.00
Offline
£50.00

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