Story
Thanks for taking the time to visit my JustGiving page. I'm running the London Marathon 2018 for this small, yet very deserving charity. Just trying to raise funds for research and management of this life changing syndrome from which we are all just a genetic mutation away from being affected by. I have watched from afar (from behind my computer screen actually)as a lovely young family have struggled with both mum and baby having Stickler,and with a new baby due soon,also possibly affected. If theres any chance of helping, by raising awareness or by making a small donation, then I'm one hundred percent behind this wonderful charity and will be proud to run in my Stickler Syndrome vest alongside all the larger, familiar charities on April 22 2018. Please please consider helping me on my way to target and to hopefully making a difference to someones life. Thankyou so much for stopping by x
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.