The reason we are doing this is for our beautiful daughter Dakota Walker, she was diagonosed November last year with Juvenile Arthritis, she has Polyarticular Arthritis affecting more than five of her joints.
Dakota fell ill in August last year, she lost weight, had no interest in anything and was in constant pain. After several visits to GPs I demanded a Blood Test was done and it showed inflammation in her joints. She was referred to Birmingham Children's Hospital.
Before our appointment she got very sick and was unable to walk and screamed with pain at night time, we were living a nightmare!
Dakota was hardly able to walk into her appointment at BCH. But they worked very quickly and after MRI scans, bloods tests, more scans she was started on medication. Dakota then had to be put to sleep in February for Steroid Injections - she had 12 injected into her joints.
Although this was a very stressful and emotional time, we did start to see improvement in her health and her movement.
Now she has nurses come every week to inject her with Methotrexate to keep her joints under control and we hope to get her into remission.
I can't tell you how brave Dakota has been the whole way and her attitude has been amazing her saying is "Dakota you can do this"
So please if you can Wear something purple on 9th June 2017 and for a small donation so that we can help this fantastic charity and raise awareness that Kids Get Arthritis too.
Thank you
Key Facts:
In the UK, approximately 12,000 children (1 in 1000) under the age of 16 have Juvenile Idiopathic Arthritis (JIA).
JIA is an inflammation of one or more joints in a child under the age of 16 years. Juvenile means that your child was under 16 when the arthritis started, idiopathic means there is no other explanation for the inflammation in their joints and arthritis means that there is swelling and inflammation in the child’s joints
The child's immune system becomes over-active or poorly controlled. As a result, it starts to attack the lining of the joint which causes inflammation and swelling. Infection can also be a trigger.
Can be more likely in children with a family history of rheumatoid arthritis or lupus
The different types of JIA are:
Oligoarthritis: 1 to 4 joints affected in the first six months
Polyarthritis: 5 or more joints are affected in the first six months. There are 2 types of polyarthritis, one where a blood test is positive for rheumatoid factor (RF) and one where the test is negative.
Enthesitis: inflammation in places where tendons attach to the bone (feet, around their hips, knees, back)
Psoriatic: often involves fingers and toes alongside a scaly rash
Systematic onset JIA: diagnosis following a fever or a rash
Undifferentiated: symptoms do not fit neatly into any of the types above
Key Messages:
The vision of JIA-at-NRAS is supporting all with JIA to live life to the full.
JIA-at-NRAS is part of The National Rheumatoid Arthritis Society (NRAS) and aims to support everyone living with the impact of RA and JIA at the start and at every stage of their journey
We strive to improve access to high quality care and services best suited to the individual needs and preferences of all children, young people and their families, wherever they live.
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