*Update*

Unfortunately, on 16 June, my Dad sadly and suddenly lost his fight with PSP. He passed away at home with my mum by his side, exactly how he would have wanted. 

I can’t really come to terms with the fact that one moment he was here and the next gone, but I know it will sink in with time and I’m eternally grateful for everyone’s support so far. Thank you x

Just over 3 years ago, my dad was diagnosed with an extremely rare disease called Progressive Supranuclear Palsy (PSP). This horrible disease causes sufferers to lose the ability to speak or swallow properly (eventually impacting the ability to eat or drink), lose balance/ability to walk, behavior changes, memory problems, and many other awful symptoms. 

Unfortunately, there is no cure or treatment, and due to it being so rare, it doesn't get much publicity or funds for research to help those suffering.

PSPA are the only UK charity dedicated to improving the lives of people living with Progressive Supranuclear Palsy (PSP). They provide information and support for people affected by PSP whilst funding research into the causes, treatment, and eventually a cure. 

Sadly, my best friends recently lost their dad suddenly to Motor-Neuron Disease, so we are all teaming up and tackling the 100k South Coast walk on the 2nd September 2023, in order to raise funds for charities which are so close to our hearts - calling ourselves "Dad's Army"!