Angela Wellington
Go Felix
Fundraising for Tree of Hope
Story
Thanks for taking the time to visit my JustGiving page.
As some of you may know I'm now officially in training for London marathon for April 2016....and in order to celebrate this once in a life time opportunity I've decided with some help from some wonderful friends to organise a charity evening to raise funds for a very special little boy called Felix. Felix is a very happy and cheeky 3 year old with a very rare genetic brain disorder called lissencephaly and miller-dieker syndrome. Lissencepahly literally translates to ‘smooth brain’ meaning that during pregnancy his brain didn’t fully develop the full six layers a normal functioning brain has, but instead has only four. This condition impacts in ways many of us take for granted, like swallowing food for example or even holding up your own head.In order for Felix to make as much progress as possible, his family work closely with the NHS and a network of therapists to try to build his strength so that one day he may be able to roll over, hold a toy and even sit on his own. With the help of the NHS he is responding extremely well and always progressing but unfortunately the amount of time the therapists are able to give him just isn’t enough to meet his needs so we are raising funds for Tree of Hope to give him the best possible therapy and specialist equipment.
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.
As some of you may know I'm now officially in training for London marathon for April 2016....and in order to celebrate this once in a life time opportunity I've decided with some help from some wonderful friends to organise a charity evening to raise funds for a very special little boy called Felix. Felix is a very happy and cheeky 3 year old with a very rare genetic brain disorder called lissencephaly and miller-dieker syndrome. Lissencepahly literally translates to ‘smooth brain’ meaning that during pregnancy his brain didn’t fully develop the full six layers a normal functioning brain has, but instead has only four. This condition impacts in ways many of us take for granted, like swallowing food for example or even holding up your own head.In order for Felix to make as much progress as possible, his family work closely with the NHS and a network of therapists to try to build his strength so that one day he may be able to roll over, hold a toy and even sit on his own. With the help of the NHS he is responding extremely well and always progressing but unfortunately the amount of time the therapists are able to give him just isn’t enough to meet his needs so we are raising funds for Tree of Hope to give him the best possible therapy and specialist equipment.
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.
