The first Gene Therapy Clinical Trial for Rett Syndrome is now underway in Canada!

This is the beginning of the end for Rett Syndrome but the job isn't done yet.

I co-founded Reverse Rett in 2010 and the progress in Rett research has been astonishing. We are now on the edge of the breakthrough we have been working towards and so, for now, the challenges continue.

Beth and Amber deserve more from life. Watching them struggle each day for so many years is horrible but gives me the determination to keep pushing on and do whatever I can in the fight against Rett.

The Jurassic Juggernauts will do the 100K of the Jurassic Coast Challenge continuously. It starts on Saturday 13th May and we are hoping to finish around 30 hours later. It will be brutal but nothing compared to living in a body that doesn't work, not being able to walk or talk and needing to take a cocktail of medications every, single day....This is Beth and Amber's reality.

Thank you to everybody who has supported me over the many years of me asking for help. Your money helped fund the lab research that has got us this far, I hope you can help us finish the job.