Chester was born 9 weeks early weighing just 3lbs. His first 50 days were spent in Neonatal Intensive Care Unit where we learned that he had damage to the white matter of his brain. He was later diagnosed with Quadriplegic Cerebral Palsy affecting all 4 limbs.

This means that his gross motor functions are severely impaired and that he has “spasticity” (extreme tightness of his muscles) preventing him from being able to move in the way he wants, resulting in unusual movement patterns. 

Through hard work and physio we have already managed to significantly improve Chester’s mobility. He has exceeded expectations but the spasticity in his muscles still prevents him being able to do most things that other children do. 

Chester has undergone surgery called Selective Dorsal Rhizotomy (SDR) that has been improving the lives of children like Chester all around the world. SDR isn’t widely available in the UK yet and has strict criteria for NHS funding, so Chester had to travel to America for surgery with Dr Park at St Louis Children's Hospital.

Following the surgery Chester has worked really hard at physio sessions 3 times per week as well as continuous work at home - but this has to be paid for privately and as you can imagine it's expensive. Chester’s rehab  also requires him having a lot of new equipment to help him - which also doesn’t come cheap! 

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